I recently did some research on a disease I was diagnosed with back in 2001. I'm trying to learn as much as I can about it, just to be aware of what could happen or symptoms to be aware of, in case I ever come out of remission.
This is a pretty cool site, had a lot of information not only of my disease (Sarcoidosis) but also anything and everything folks could be experiencing or going through. There is a community of friends to learn from and bounce ideas off of, etc.
Anyway...check it out if you feel the urge.
Monday, September 29, 2008
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2 comments:
Dude, I had no idea you had a diagnosis, very sorry to hear that's what it is. Donna is wondering if you have ever had Erythema Nodosum (EN) ? Apparently when someone has EN they test you for Sarcoidosis. Donna has EN, and it sucks. Hang in there.
Thanks, Brien. I don't know if I had EN or not. Went through all kinds of testing trying to figure out exactly what I had. Between Samantha and my pulmonary specialist thinking that it could be sarcoidosis, we finally took the right steps and found out it was.
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